What I Would Tell You
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What I Would Tell You

$19.95

By Julie Keon

When Julie and her husband, Tim, were preparing for the birth of their first child, they had no idea that their lives were about to change on a much greater scale than what they had anticipated. Their daughter, Meredith, unexpectedly suffered complications at birth resulting in a significant brain injury. She was diagnosed with life-limiting cerebral palsy and Julie and Tim began walking this road of unique parenting. This book is a collection of the wisdom Julie has gained over the first fourteen years of Meredith’s life and is a beacon of hope for those just starting this adventure. Her words bring guidance not only to weary parents raising a child with extra needs and medical fragility but also to the professionals who care for them. Her unique insight and perspective will benefit anyone who has had an unexpected detour in their life.

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What her readers are saying

“This is a must read for all parents, caregivers, family members, doctors and therapists to any child that has a disability. I am forever grateful for Julie’s willingness to put herself out there, for sharing her words of wisdom, her heart and her love with those of us just starting this experience of parenting. I am a better mom and person because of it.”
~ Jen Cunningham, Mom to Chase

“Julie Keon has written the quintessential must-read guidebook for parents of children with disabilities. She mines her own complex care parenting experience to speak the unspeakable and reflect on the unthinkable. In doing so, Keon offers the reader a hand of friendship and compassion. Her wise and companionable prose will help any parent of a child with disabilities to learn that by making peace with grief and uncertainty, there is ample room for joy and pride. This is a life-changing and life-affirming book for all parents of complex children as well as those who love and support them.”
~ Donna Thomson, mother, author of “The Four Walls of My Freedom: Lessons I’ve Learned from a Life of Caregiving” and “The Unexpected Journey of Caring: The Transformation From Loved One to Caregiver “(with Dr. Zachary White)

“Julie’s compassionate and poignant storytelling creates a “road map” making this book a must read, touching on both the lightness and darkness of what unexpected plot twists in life grant you, and how you can cultivate resilience and hope along the way.”
~ Betsy Pilon, President, Hope for HIE Foundation

“A must-read for anyone working with these families in hospitals, in rehabilitation environments, and on school and community health teams. Julie’s story raised my awareness and helped me become a more effective health care leader. It is a transformational tool that leads to a deeper understanding of the experience of families with medically fragile children, resulting in greater compassion, stronger empathy and the potential for improved capacity to support them.”
~ Chantal Krantz, RN, MScN, Manager, Connected Care, Children’s Hospital of Eastern Ontario and Ottawa Children’s Treatment Centre

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